Wednesday, June 15, 2011

You Can Do This




Diabetes is a frustrating, difficult disease. What keeps me going is all the people in my life who encourage me and stand with me to battle this disease day after day.

Kim came up with the idea to share our stories. Because we can do this.

So, here is my first official vlog.

I wanted to share a few things about living with diabetes for nearly 36 years.

You can do this.

Saturday, February 26, 2011

Dixie's Alert

Many times, after Dixie has alerted me, I wish that I had thought to record it. But, as it turns out, I'm low when she alerts so I'm not always at maximum brain power to remember to turn a camera on her.

Yesterday, however, I did.

I was sitting in a recliner. Dixie half jumped, and put her front paws in my lap. Having my Iphone in hand, I turned on the video camera.Then , I try to just pet her (and clean the sleep out of her eyes) so you can see that "sweet talking" her (petting) doesn't distract her from her job. I can't just "pet the alert out of her."

You'll see that holding the phone to video while blood testing is not that easy. Yes, I know that I spilled test strips everywhere. (and cleaned them up once the filming was complete) And I apologize for the camera jumping around while I was trying to poke my finger.

Dixie hates making eye contact with me, or anyone for that matter. When she does, I know she means business. After the stare, she does her two other alerts. First she paws me, and then she gets her nose under my arm/hand and pushes. You'll get to see all this. And no, I didn't have symptoms. I had no idea I was low.

People ask me all the time, "how does Dixie alert you?" Well...this is how.

Thank you, Dixie.

Tuesday, November 9, 2010

6 things - D blog day

Here are six things I wish people knew about living with Type 1 diabetes:

1. It's complicated.
To some people it seems like if I just watch what I eat, give insulin, and prick my fingers I will be right as rain. It's not that easy. Diabetes is complicated. It's a hundred decisions about "simple things" like eating and exercising. It's constantly thinking about what's next, what's worked, what hasn't worked, and what's ahead. What works one day doesn't always work the next. It's like a lifelong brain-teaser.

2. It's a lot of mind games.
It's a lot of mind work. It's constant mental math trying to calculate carbs and insulin. (and I HATE math. I'm rotten at it) Trying to remember how food affected me in the past. Trying to remember to keep a running total of carbs that I eat. Remembering to bolus for said carbs. Convincing myself that a high or low number on my tester doesn't mean failure and doesn't mean I have to beat myself up. Convincing my mind that I can do this. My brain can be simply exhausted some days to tackle all that I need to tackle just to stay healthy.

3. It's a time stealer.
Diabetes takes time. Time to remember supplies. Time to fill cartridges with insulin. Time to deal with insurance companies. Time to test. Time to change my pump site. Time to read labels. Time to figure out solutions to blood sugar problems. Time lost to lows. Time lost to highs. Time to keep supplies stocked. Time for doctor appointments.
I've said that if I was cured, I'd have a heck of a lot of free time.

4. It's damaging.
Diabetes damages small blood vessels. In my eyes, in my gastrointestinal system, in my kidneys, and in my fingers and toes. Controlling my blood sugars helps stop some of the damage. But having diabetes means that damage is taking place under my skin. It's scary to think about. It's hard to not worry about what might happen.

5. If you know a person with diabetes, you know ONE person with diabetes.
This disease isn't the same for all of us. What works for one person, doesn't work for another. The way one person uses insulin isn't the way another person does. What diet strategy works well for one of us, doesn't work for another. It is called diabetes, but it looks different for each individual who lives with it.

6. I don't have a service dog because I have "brittle" or "bad" diabetes. I have Dixie because:
1) I love dogs,
2) I was having problems knowing when my blood sugar was low or dropping,
3) I wanted a security system and didn't want another site needed for a CGMS (continuous glucose monitoring system),
4) I like to be on the cutting edge and try things that others don't always believe can work, and
5) because it makes living with diabetes a LOT easier for me.